{"id":344,"date":"2022-02-03T13:56:22","date_gmt":"2022-02-03T13:56:22","guid":{"rendered":"https:\/\/distory.ca\/blog\/?p=344"},"modified":"2022-02-03T13:56:22","modified_gmt":"2022-02-03T13:56:22","slug":"a-pandemic-of-grief-loss-and-frustration-copy","status":"publish","type":"post","link":"https:\/\/distory.ca\/blog\/uncategorized\/a-pandemic-of-grief-loss-and-frustration-copy\/","title":{"rendered":"&#8220;\u00adWhat happens if our voices are never heard?&#8221; : Voices Unheard"},"content":{"rendered":"\n<p>Written by Nick Herd, Doreen Kalifer, and Robin Arnott<\/p>\n\n\n\n<p><strong>January 2022<\/strong><\/p>\n\n\n\n<p class=\"has-text-color\" style=\"color:#006b80\"><em>Right now, the barriers facing people labelled\/with intellectual disabilities are more than just inequitable \u2014 they are dangerous. We are concerned and we are not alone.<\/em><\/p>\n\n\n\n<p>David Leprofsky, law professor and chair of Accessibility for Ontarians Act Alliance (AODA) told the CBC: &#8220;The Ford government too often has taken a one-size-fits-all approach to its emergency planning, assuming that people have no disabilities\u201d (Williams, 2022). Activists agree, noting that the 2.9 million people with disabilities in Ontario are being left out of the pandemic response (Williams, 2022).&nbsp;<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-style-default is-layout-flow wp-block-quote-is-layout-flow\"><p>&nbsp;&nbsp;&nbsp; It makes me feel worried because we\u2019re part of the community as well.<\/p><cite><span class=\"speaker\">\u2014 Sean<\/span><\/cite><\/blockquote>\n\n\n\n<p>The conditions of Ontario\u2019s long-term-care homes have been exposed, however, younger disabled people living in care feel as though their needs are being overlooked. DiStory partner Sean, said: \u201cI think they [the government] should talk about group homes instead of just long-term-care homes. It makes me feel worried because we\u2019re part of the community as well.\u201d Marie, a survivor from Huronia Regional Centre (HRC) and partner of DiStory, is upset about the treatment of labelled people, she said \u201cThey should be treated with more respect, like human beings, they\u2019re not animals and they\u2019ve got feelings too like everybody else.\u201d<\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-vertically-aligned-top is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kat-smith-568025-1-1024x683.jpg\" alt=\"Black and white image of person with light curly shoulder length hair. She has an X taped on her mouth and finger in front of it. She is wearing a black tank top.\" class=\"wp-image-345\" srcset=\"https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kat-smith-568025-1-1024x683.jpg 1024w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kat-smith-568025-1-300x200.jpg 300w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kat-smith-568025-1-768x513.jpg 768w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kat-smith-568025-1-1536x1025.jpg 1536w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kat-smith-568025-1-2048x1367.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption><span style=\"font-size:0.75em\">Photo by Kat Smith from Pexels. <\/span><\/figcaption><\/figure>\n<\/div>\n<\/div>\n\n\n\n<p>Some of us living in our own homes also feel excluded from the dialogue. \u201cPeople need to see what\u2019s happening with this crisis, it\u2019s unbelievable: they just stand there dead line. I find it hard that people don\u2019t want to listen\u201d said Cindy, also survivor of HRC and DiStory partner. Harold, another DiStory partner and survivor of HRC, feels silenced because of his voice, he said: \u201cPeople have learned to speak differently, and they can\u2019t help it. The government never listened to us, they just put money in their pockets.\u201d Others feel silenced because their viewpoints differ from the ones we typically hear about. Pat, survivor and DiStory partner, shared \u201cWell I don\u2019t know if I\u2019d be allowed to share my views because it doesn\u2019t fit the narrative.\u201d<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-style-default is-layout-flow wp-block-quote-is-layout-flow\"><p>&nbsp;&nbsp;&nbsp; We need to get them to listen to us.<\/p><cite><span class=\"speaker\">\u2014 Harold<\/span><\/cite><\/blockquote>\n\n\n\n<h3 class=\"wp-block-heading\" id=\"needs-unmet\"><em><strong>Needs Unmet<\/strong><\/em><\/h3>\n\n\n\n<p>Healthcare resources have been stretched and staffing shortages, combined with community restrictions, have resulted in limited programming and support services. Basic needs have gone unmet for some labelled people. \u201cPeople don\u2019t realize, people in group homes need to go out and buy stuff and they can\u2019t\u201d said Harold.<\/p>\n\n\n\n<p>The balance between the needs of healthcare workers and the population they support can be tricky, and Sean understands that everyone\u2019s needs are important: \u201cI only get 25 minutes to go out and come back. I see where the staff are coming from because they go home, and they don\u2019t want to get their kids sick.\u201d Another younger partner of DiStory, Kevin, has felt stuck because he has had to put his goals on hold, \u201cI want to get a job, outside of my home. I want to get a paid job. It\u2019s harder to get a paid job when you\u2019re at home.\u201d<\/p>\n\n\n\n<h3 class=\"wp-block-heading\" id=\"lives-threatened\"><em><strong>Lives Threatened<\/strong><\/em><\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:35%\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kira-schwarz-6938741-683x1024.jpg\" alt=\"Black and white image of person wearing black sweater, light-washed jeans and bare feet with painted toenails. She has her head down and arms folded around knees. She is leaning against a wall.\" class=\"wp-image-355\" srcset=\"https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kira-schwarz-6938741-683x1024.jpg 683w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kira-schwarz-6938741-200x300.jpg 200w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kira-schwarz-6938741-768x1152.jpg 768w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kira-schwarz-6938741-1024x1536.jpg 1024w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kira-schwarz-6938741-1365x2048.jpg 1365w, https:\/\/distory.ca\/blog\/wp-content\/uploads\/2022\/02\/pexels-kira-schwarz-6938741-scaled.jpg 1707w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><figcaption><span style=\"font-size:0.75em\">Photo by Kira Schwarz from Pexels.<\/span><\/figcaption><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-top is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"has-text-color\" style=\"color:#006b80\"><em>Securing access to healthcare resources can be challenging for labelled people, particularly those with limited mobility. For instance, vaccination sites are often crowded and there are long wait times for appointments. In a CBC interview, wheelchair-user Catherine Gardner said that there is typically no seating at these locations, and &#8220;If you&#8217;re using a mobility device, a cane, walker, you just can&#8217;t stand in line that long\u201d (Williams, 2022).<\/em><\/p>\n\n\n\n<p class=\"has-text-color\" style=\"color:#006b80\"><em>Doreen, survivor and DiStory partner is 72-years-old, and she has been having trouble accessing everything she needs to: \u201cIt\u2019s a danger for seniors as well, especially with the snow. They don\u2019t plow it right, they just do what they need to do [to] not get sued, that\u2019s it. How are we supposed to be careful when people just don\u2019t care anymore?\u201d&nbsp;<\/em><\/p>\n<\/div>\n<\/div>\n\n\n\n<blockquote class=\"wp-block-quote is-style-default is-layout-flow wp-block-quote-is-layout-flow\"><p>&nbsp;&nbsp;&nbsp; What\u2019s the government doing for us? What are they doing right now?<\/p><cite><span class=\"speaker\">\u2014 Kevin<\/span><\/cite><\/blockquote>\n\n\n\n<p>Transportation to pop-up clinics presents its own challenges, due to booking systems that typically require rides to be booked 48-hours in advance. John Redins relies on city-run accessible transportation, and he told the CBC that he was not able to get tested and vaccinated as soon as he had hoped and is now recovering from Covid-19 (Williams, 2022). &#8220;It frustrates me because I feel like I&#8217;m being left out,&#8221; he added (Williams, 2022). Kevin expressed his frustrations with the province\u2019s exclusion of the needs of labelled people, asking important questions: \u201cWhat\u2019s the government doing for us? What are they doing right now?\u201d Younger DiStory partner Nick echoed John and Kevin: \u201cIt hurts my whole body; it hurts my heart.\u201d<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-style-default is-layout-flow wp-block-quote-is-layout-flow\"><p>&nbsp;&nbsp;&nbsp; The world can be a better place if we make it a better place.<\/p><cite><span class=\"speaker\">\u2014 Nick<\/span><\/cite><\/blockquote>\n\n\n\n<p>Inequality is nothing new to the partners of the Project DiStory. As a group, we believe that storytelling is an important part of advocacy. The barriers we\u2019ve discussed in this post have made our collaborative work even more challenging and we are grateful for the individuals who have helped us continue to work together. Nick said that storytelling is his specialty and that \u201cThe world can be a better place if we make it a better place. I bet everyone wants that. I bet you do too.\u201d<\/p>\n\n\n\n<p><\/p>\n\n\n\n<p style=\"margin-top:4em\"><strong>Source:<\/strong> Williams, Nicole (2022). People with Disabilities \u2018left out\u2019 of Ontario\u2019s pandemic response. Date accessed: January 24, 2022. Accessed at: <a rel=\"noreferrer noopener\" href=\"https:\/\/www.cbc.ca\/news\/canada\/ottawa\/ontario-covid-19-disability-accessibility-1.6311083\" target=\"_blank\">https:\/\/www.cbc.ca\/news\/canada\/ottawa\/ontario-covid-19-disability-accessibility-1.6311083<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Written by Nick Herd, Doreen Kalifer, and Robin Arnott January 2022 Right now, the barriers facing people labelled\/with intellectual disabilities are more than just inequitable \u2014 they are dangerous. We are concerned and we are not alone. David Leprofsky, law professor and chair of Accessibility for Ontarians Act Alliance (AODA) told the CBC: &#8220;The Ford &#8230; <a title=\"&#8220;\u00adWhat happens if our voices are never heard?&#8221; : Voices Unheard\" class=\"read-more\" href=\"https:\/\/distory.ca\/blog\/uncategorized\/a-pandemic-of-grief-loss-and-frustration-copy\/\" aria-label=\"Read more about &#8220;\u00adWhat happens if our voices are never heard?&#8221; : Voices Unheard\">Read more<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,1],"tags":[6],"class_list":["post-344","post","type-post","status-publish","format-standard","hentry","category-covid-19","category-uncategorized","tag-covid19"],"_links":{"self":[{"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/posts\/344","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/comments?post=344"}],"version-history":[{"count":22,"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/posts\/344\/revisions"}],"predecessor-version":[{"id":371,"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/posts\/344\/revisions\/371"}],"wp:attachment":[{"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/media?parent=344"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/categories?post=344"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/distory.ca\/blog\/wp-json\/wp\/v2\/tags?post=344"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}